Robert is one month old and suffers from a genetic skin disease called “Epidermolysis Bullosa”. EB is a rare skin condition where the two skin layers lack the protein anchors that hold them together, and any action that creates friction between the layers (like rubbing or pressure of any kind) creates blisters and painful sores. The wounds are compared to the sores of third-degree burn. It is very rare, and as of now there is no cure.
It’s a miracle that he is still alive today! He and his parents showed up at my front door last Sunday morning, and after a google search, we immediately took him to a hospital in Kampala where after many, many tests they confirmed that our findings were in fact correct.
In attempt to keep Robert more comfortable he is constantly wrapped in heavy dressings, so that his mother can hold him without causing friction, resulting in more blistering
Yesterday Robert came home after a week and a half in the hospital. He and his mother will be staying here for a period, or possibly until he goes to be with Jesus. There is really not a lot that can be done as there is no “treatment”, but we are doing our best to prevent infection and treat whatever does come.
"And the King will reply, 'I tell you the truth, whatever you did for one of the least of these brothers of mine, you did for me.’ Long ago God called me to love the “least of theses”, He told me to follow Him. He led me to Uganda. He put me on this path. He said “trust me at ALL times”. So I am, I am trusting that God has a big plan because I don’t; I’m just taking it one day at a time, relying on His strength to carry me through the tough situations that He brings to my front steps. Even when it seems to hard for me to handle, it’s ok because I am not my own, I am His, and He will provide everything that I need to do the work HE has called me to! “Trust in the Lord with ALL your heat and lean not on your own understanding, but in ALL your ways acknowledge Him and He will direct your path.” I don’t know why God sent Robert here, but He did. I don’t know why He thought it would be a good idea to bring the “1 in a million baby” to the 21 year old with no professional medical training, but obviously He did. God is still saying "trust ME".
Now, I don’t know about you, but I work for a God who is still in the business of performing miracles…so you just never know what He’ll do…and I for one cannot wait to find out!
Note: because of the many special tests that needed to be run Roberts hospital bills are VERY high…and his care here will also be fairly extensive as we have to buy sterilizing equipment, and many other things required for his daily care. If you would like to donate and help cover some of Robert’s expenses it would be such a blessing! Please indicate when donating that it is for “Robert”. Thank you in advance!